Aya's (16 - 35 years old)
If you are between 16 and 35 years old and have a brain tumor, there is special support available for you.
You are young and you have been diagnosed with a brain tumor
Young people and young adults with cancer (Adolescents and Young Adults, or AYAs, aged 16-35) face specific medical issues and various psychosocial challenges: how will they continue with their studies or career, how will they communicate with friends and family, and what about their fertility? Their lives are put on hold, and they become dependent on others again. It is precisely because of these age-specific questions that they require personalized care and aftercare.
The Kom op tegen Kanker (Stand Up to Cancer) and the Stichting tegen Kanker (Foundation Against Cancer) have dedicated pages on their websites for young people with cancer. You'll find useful information, tips, website links, testimonials, and more.
Activities for AYAs are organized in Flanders by various organizations. This way, you can meet other young people who recognize what you're going through. You can find the calendar here .
You'll find a lot of information on hospital websites. Your own hospital might also offer services for AYAs; be sure to check with your healthcare providers.
AYA care at the University Hospital Antwerp
AYA care at Ghent University Hospital
What if you don't get better anymore?
Receiving the news that you're not getting better is incredibly difficult. Not just for you, but also for those around you. Ask your healthcare team about psychosocial support; you don't have to go through this alone.
Care4AYA has developed brochures specifically for you as an AYA, but also for your parents and siblings. Interested? Talk to your healthcare provider or ask them to order them through the regional coordinator. More information